Over deze podcast
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!
48 afleveringen · Society
CDKL5 in Color
Over deze podcast
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!
Recente afleveringen
- Episode 46: Let’s Talk About Respite26 sep · 30 min
- Episode 45: We’re Back for Season Three!12 sep · 31 min
- Episode 44: Exploring Caregiver Guilt (Part 3)1 jun · 24 min
- Episode 43: Exploring Caregiver Guilt (Part 2)1 jun · 34 min
- Episode 42: Exploring Caregiver Guilt (Part 1)1 jun · 29 min
- Episode 41: Michal’s Life with Natalia (age 5)23 mei · 29 min
- Episode 40: Let's Talk About Moments of Joy9 mei · 24 min
- Episode 39: Let’s Just Chat!25 apr · 29 min
- Episode 38: Aditi’s Life with Ria (age 6)12 apr · 36 min
- Episode 37: Let’s Talk About Gene Therapy28 mrt · 29 min
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