About this podcast
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the…
109 episodes · Non-profit
PWS United
About this podcast
Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. Join us in our mission to enhance the…
Recent episodes
- Ep108: Newborn Screening and Florida's Sunshine Genetics Act29 Sept · 36 min
- Ep107: Belonging, Intimacy, and Sexual Health with PWS15 Sept · 30 min
- Ep106: Behavior, Advocacy, Siblings: Celebrating 2 Years of Podcasting1 Sept · 50 min
- Ep105: Spreading Love: The Life and Legacy of Karen and Her Family26 Aug · 38 min
- Ep104: Leave a Lasting Legacy with PWSA | USA (Episode Re-Air)18 Aug · 29 min
- Ep103: PWS Roadshow: Building Community, One Stop at a Time4 Aug · 22 min
- Ep102 Pulse 151: Disability Pride, Podcast Changes, Voices on VYKAT 621 Jul · 54 min
- Ep101: Transitioning PWS to Adulthood14 Jul · 54 min
- Ep100 Pulse150: 100 Episodes, Convention, State Specific Events7 Jul · 30 min
- Ep99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny Pacha30 Jun · 1 h 08 min
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