
← The Rare Life22. Okt. · 58 Min.
236: When It Feels Like Your Fault | Accidents, Carriers, + Pregnancy What-Ifs
<p>Did my body fail my child? Did I do something wrong? Could I have prevented this?</p><p>You don't have to be a genetic carrier to grapple with the complex feelings around whether you somehow caused your child's disabilities or medical complexities. So many of uscan carry this uncertainty and sometimes even unspecified guilt around these feelings.</p><p>In today's episode, we're digging into these complicated feelings, along with experiences shared by parents in our community. From finding out you're a genetic carrierto birth injuries, medical decisions, and spontaneous genetic mutations, we talk about the many different ways these feelings pop up for parents.</p><p><strong>And a big thanks to our sponsor for this episode, themakers of the incredible documentary, </strong><a href="https://www.thezebraandthebear.com/"><strong>The Zebra & The Bear!</strong></a><strong></strong></p><p><strong>Links:</strong></p><p><a href="https://www.thezebraandthebear.com/"><strong>Watch The Zebra & The Bear</strong></a><strong> </strong></p><p>Listen to <a href="https://therarelife.org/show-notes/ep-22-its-all-my-fault">Ep. 22: It's All My Fault.</a></p><p>Listen to <a href="https://therarelife.org/show-notes/ep-191-abortion-parents-of-disabled-kids-w-alyssa-nutile">Ep. 191: Abortion + Parents of Disabled Kids.</a></p><p>Listen to <a href="https://therarelife.org/show-notes/ep-77-those-who-cannot-say-i-wouldnt-have-them-any-other-way">Ep. 77: To Those Who Cannot Say, "I Wouldn't Have Them Any Other Way"</a></p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSfngJAzL1UjQ9FOKHwpLSNzj3nBXIKLZXYSbCYounjfqLxD5Q/viewform?usp=sf_link">Fill out our contact form</a> to join upcoming discussion groups!</p><p>Follow us on Instagram <a href="https://www.instagram.com/the_rare_life/">@the_rare_life</a>!</p><p><a href="https://therarelife.org/donate">Donate to the podcast</a> or <a href="https://therarelife.org/contact">Contact me</a> about sponsoring an episode.</p><p>Follow <a href="https://www.facebook.com/people/The-Rare-Life-Podcast/100039719031110/">the Facebook page</a>. </p><p>Join the Facebook group <a href="https://www.facebook.com/groups/parentsofrare">Parents of Children withRare Conditions</a>.</p><p>And if you love this podcast, please leave usa rating or review in your favorite podcast app</p><p> </p><p></p>