The Rare Life

← The Rare Life22 Oct · 58 min

236: When It Feels Like Your Fault | Accidents, Carriers, + Pregnancy What-Ifs

236: When It Feels Like Your Fault | Accidents, Carriers, + Pregnancy What-Ifs22 Oct58 min

<p>Did my body fail my child? Did I do something wrong? Could I have prevented this?</p><p>You don&#39;t have to be a genetic carrier to grapple with the complex feelings around whether you somehow caused your child&#39;s disabilities or medical complexities. So many of uscan carry this uncertainty and sometimes even unspecified guilt around these feelings.</p><p>In today&#39;s episode, we&#39;re digging into these complicated feelings, along with experiences shared by parents in our community. From finding out you&#39;re a genetic carrierto birth injuries, medical decisions, and spontaneous genetic mutations, we talk about the many different ways these feelings pop up for parents.</p><p><strong>And a big thanks to our sponsor for this episode, themakers of the incredible documentary, </strong><a href="https://www.thezebraandthebear.com/"><strong>The Zebra &amp; The Bear!</strong></a><strong></strong></p><p><strong>Links:</strong></p><p><a href="https://www.thezebraandthebear.com/"><strong>Watch The Zebra &amp; The Bear</strong></a><strong> </strong></p><p>Listen to <a href="https://therarelife.org/show-notes/ep-22-its-all-my-fault">Ep. 22: It&#39;s All My Fault.</a></p><p>Listen to <a href="https://therarelife.org/show-notes/ep-191-abortion-parents-of-disabled-kids-w-alyssa-nutile">Ep. 191: Abortion + Parents of Disabled Kids.</a></p><p>Listen to <a href="https://therarelife.org/show-notes/ep-77-those-who-cannot-say-i-wouldnt-have-them-any-other-way">Ep. 77: To Those Who Cannot Say, &quot;I Wouldn&#39;t Have Them Any Other Way&quot;</a></p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSfngJAzL1UjQ9FOKHwpLSNzj3nBXIKLZXYSbCYounjfqLxD5Q/viewform?usp=sf_link">Fill out our contact form</a> to join upcoming discussion groups!</p><p>Follow us on Instagram <a href="https://www.instagram.com/the_rare_life/">@the_rare_life</a>!</p><p><a href="https://therarelife.org/donate">Donate to the podcast</a> or <a href="https://therarelife.org/contact">Contact me</a> about sponsoring an episode.</p><p>Follow <a href="https://www.facebook.com/people/The-Rare-Life-Podcast/100039719031110/">the Facebook page</a>. </p><p>Join the Facebook group <a href="https://www.facebook.com/groups/parentsofrare">Parents of Children withRare Conditions</a>.</p><p>And if you love this podcast, please leave usa rating or review in your favorite podcast app</p><p> </p><p></p>